EEG – 13.12.17

All wired up. Yep that’s me a few weeks ago having an EEG (electroencephalogram) due to the original seizure I had. Thankfully I haven’t had another one since the initial one. However it was suggested to have a follow up. I’m still waiting to hear any results, but I’m a believer in no news is good news….right?!

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It’s the most bizarre test, the lady conducting it basically likened it to a lie detector, but for your brain, as she asked me to do certain movements and expressions all with my eyes closed, and she measures the electricity, looking basically for any sign of seizure activity. The last time I had one of these was at the Alfred, this time last year, after that ever (not) so grand arrival & discovery of Terry. Almost one year ago. After the test, those little wires were detached leaving a very sticky glue/wax like substance all over my forehead and hair. After the women scrubbed at me with what felt like steel wool to try and remove them, she declared she was “finished”. Ahhh no lady, you were far from it. I tried to fix myself up in the mirror before leaving her room, I could feel she was giving me that hurry on “huff” noise…if things weren’t bad enough with the BS now I had to leave looking like a complete crazy person. I had hair poking in every direction imaginable with a mountain of sticky shit, still all over me.

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This past year has certainly not been one I’d ever wish to repeat or for anyone I know to ever go through. It’s been absolutely awful. Never would I have ever dreamed in my worst nightmares that I, would get cancer. WTF!? Me, Donna Nottage. Newly married. 2 young children. Cancer?! Really? No. Surely not. But as they say, cancer doesn’t discriminate. And it’s true. Thankfully, I’m happy to say I’m doing OK. I’m remaining as positive as I can and going through the motions. Although Terry will never be completely gone (unless some type of miracle occurs) if I can continue living and feeling the way I do now, I’ll be happy. Thankfully we’ve decided to head away for Christmas this year as the thought of being here on Xmas Eve definitely doesn’t sit well with me and certainly raises my anxiety levels just thinking about ‘that night’. I think I’ll still be nervous wreck going to bed however. But there’s one thing for sure, it will be time well spent with my beautiful family & little tribe of nephews & nieces on the Sunny Coast keeping my mind off that ‘anniversary’ and having an enjoyable Christmas. A total Christmas re-do.

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Visiting my Oncologist earlier this week, I asked what is the plan post chemo? He said, if we get through the 12 rounds planned (currently taking round 8) we generally stop as patients have had enough by then and need a break as they can’t tolerate it. From the way I’m feeling now (praying I’ll stay the same) I’ll be taking that 12th round come April no worries. When I questioned why just 12 months, if people are doing ok? He advised there’s no evidence to suggest any more chemo is beneficial. Which is a good thing, I guess, as to celebrate my completion of chemo, I’m off to Europe at the beginning of May to see my best friend Kim for a couple of weeks. I can’t wait!! So already 2018 is looking like a great year. Now to smash out this round of chemo and move on to the next. No point dwelling on the past, you can’t change it.

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Wishing all of you a wonderful Christmas 🎄. Here’s to a WONDERFUL 2018.

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Donna xx

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